“I’ve lost so much weight recently and can’t seem to gain it back, no matter what I do.”
“Wow, I wish I had that problem!”
I’ve been experiencing some pretty unexpected, prolonged, and horrible gut issues for over 4 months now and I’ve had more conversations like the above than I’d like to admit. Continue reading “I want you to know why complimenting my weight loss hurts me”
This article was originally posted as a private post on my Facebook account on September 8, 2016.
Ok so… After a really tough couple of months, and a very tough week last week, I want to open up and be honest about possibly my biggest secret.
People will know me as a happy, optimistic (and hilariously funny) person. People regularly tell me that they “couldn’t do what I do” in terms of taking huge, rare diagnoses and difficult treatments in my stride and pushing myself to still do what I can with a smile on my face. Continue reading “I hate my chronic illness (and that’s ok)”
I was diagnosed in July 2015 with a Primary Immunodeficiency (PID) called Common Variable Immunodeficiency (CVID) (we’re all about the acronyms here), and I did what any 27 year old would do and jumped on to Google.
It was terrifying.
Both because of the super medical sites full of intimidating jargon, and the personal blogs by people who were incredibly ill who I didn’t relate to. Continue reading “What is Common Variable Immunodeficiency (CVID)?”